Table 1 Demographic and caregiving characteristics of young adult caregivers
Participant number | Country of origin, language of the session | Whom they do take care | Type and severity of CR’s illness | Duration of taking care | Living with the CR | Anybody else providing care | Type of support provided |
|---|---|---|---|---|---|---|---|
P1 | The Netherlands, Dutch | Younger sister | Autism and anorexia | Since childhood | No | Mother, aunt | - Practical support by carrying out the parenting duties if the parents are not around such as taking the younger sister to open days at school |
Mother | Burnout and trauma | 2 years | No | Aunt | - Practical support such as cooking and cleaning for the CR | ||
Grandmother | Frailty a | b | No | Aunt | - Emotional support such as listening and talking to her | ||
P2 | The United Kingdom, English | Father | Stage two of multiple myeloma | 1 year | Yes | Mother | - Household tasks such as cooking and cleaning - Drive the CR to the hospital for the chemotherapies |
P3 | Czech Republic, English | Boyfriend | Depression | 1 year | Yes | No | - Emotional support by listening and motivating the CR |
P4 | The Netherlands, Dutch | Younger brother | Down syndrome | Since childhood | Yes | Parents and younger brother | - Help with medicine - Picking up the CR from school - Assist in daily activities e.g., taking the CR out to cinema, getting him to bed |
P5 | The United Kingdom, English | Grandmother | Frailty Limited mobility | 8 years | No | Parents and younger brother | - Assist in daily activities such as cooking for the CR, getting her dressed, giving her company |
P6 | The Netherlands, Dutch | Mother | Rheumatism a | 2 years | No | Father | - Household tasks such as cooking - Emotional support such as talking to the CR - Pick up medicines from the pharmacy and sometimes take the CR to the hospital |
P7 | The Netherlands, Dutch | Mother | Multiple sclerosis | Since childhood | No | Father and younger sister | - Help with bathing - Occasionally cook for the CR - Provide emotional support - Give the CR medicines that includes buying, sorting and arranging medicines as well |
P8 | India, English | Parents | Hereditary illness | For years | No | Brother | - Practical support such as taking care of household chores and reminding the CR about the hospital appointments |
P9 | The Netherlands, English | Grandmother | Frailty, osteoporosis and early stages of dementia | Since childhood | No | Mother, father and sister | - Emotional support such as talking to the CR on the phone 4–5 times a week - Practical support such as helping with the grocery shopping |
P10 | The Netherlands, English | Grandmother | Frailty | 3 years | No | Mother and sister | - Household tasks such as cooking and cleaning the house for the CR |
P11 | Indonesia, English | Girlfriend | Mental illness: bipolar disorder but not clinically diagnosed | 2 years | No | Therapist | - Emotional support such as motivating and guiding the CR - Financial support such as paying for therapies and medicine |
P12 | The Netherlands, English | Friend | Cystic fibrosis | Since childhood | No | Boyfriend, friends | - Emotional support such as talking to the CR on the phone daily - Visit the CR at the hospital |
P13 | The Netherlands, Dutch | Grandfather | Frailty. Decline in hearing and seeing abilities | 3 years | No | Mother and aunt | - Emotional support such as listening to the CR - Practical support such as help with the grocery shopping |